Annual Report 2018

Strengthening the Safety Net

A look at how the PAN Foundation worked to improve access and reduce out-of-pocket costs in 2018.

58% of Americans have delayed or gone without essential medical care because of prohibitively high out-of-pocket costs.

Source: 2019 Morning Consult/Business Insider poll

That’s why the PAN Foundation helps people living with life-threatening, chronic and rare disease access their critical medications.
  • Provided $350 million

    in co-pay assistance to help patients with their out-of-pocket costs

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  • 95 cents of every dollar

    went directly to patients to provide financial assistance and support

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  • Helped 182,615 people

    in all 50 U.S. states and territories

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Reflections from our Leadership Team

Setting the course to advocate for lower out-of-pocket costs.

Martin Bieber, Chairperson

Doing more for the millions who need patient assistance.

Dan Klein, President and CEO

Advocating on Behalf of Patients

In 2018, we convened a stakeholder roundtable to exchange ideas on promoting access and affordability, collaborated with more than 50 national patient advocacy groups to respond to the administration’s blueprint for lowering out-of-pocket costs, published issue briefs and other resources, and developed position statements to guide our advocacy efforts.

Increasing Access to Treatment Through Technology

We've continued to advance our systems to provide exceptional service that is efficient, safe and secure. Our technology and enrollment processes allow us to offer a fast and easy way for patients to obtain assistance from PAN—so they can start and stay on treatment without delay.

Educating and Engaging New Supporters

We took community-building efforts to the next level by launching an educational and awareness campaign about the consequences of high out-of-pocket costs on patients and families, reaching over 100,000 people—many of whom learned about our mission for the first time.

Simplifying the Search for Assistance

Until recently, people looking for charitable assistance had to manually monitor the status of disease funds across multiple organizations. That’s why we developed FundFinder, the first and only web app that helps patients and their healthcare team find and receive instant alerts when charitable assistance is available.

Read more about FundFinder about searching for assistance

Bolstering Our Best-in-Class Compliance Program

PAN’s commitment to compliance allows us to continue connecting thousands of people with the healthcare they need, while ensuring program integrity, transparency and effectiveness.

Read more about our compliance program

In Their Words...

I could not have afforded these expensive medications without giving up our home...Once PAN stepped in, it was like being reborn.

Phyllis, Grant Recipient

When I told the patient that their entire co-pay would be covered, they started crying and gave me a big hug...

Jacqueline, Financial Navigator

Looking Forward

We are committed to expanding our services and reducing barriers to treatment for patients. Through new programs, continued investment in technology and a strong advocacy voice, we will facilitate access to care and strive to reduce out-of-pocket costs for patients.

In 2019 and the coming years, PAN will expand its role to meet the needs of patients, develop innovative strategies to reduce out-of-pocket costs and collaborate with others to elevate our collective voice on behalf of patients.