Being insured does not guarantee access to affordable healthcare.
That is the reality for millions of patients today who face high out-of-pocket costs for their prescription medications. High-deductible health plans and the Medicare prescription Part D benefit design force people to pay thousands of dollars before they can fill their prescriptions and begin treatment.
While the safety net provided by the PAN Foundation and similar charities serves a critical need today, long-term, we believe there are strategies that can significantly help patients lower their out-of-pocket prescription medication costs.
That is why a vital part of our mission is to advocate on behalf of patients for legislative and regulatory change that will lower these costs and help people access their treatment without delay.
The following position statements guide our work in advocating for increased access to healthcare for underinsured patients.
In 2018, PAN collaborated with stakeholder groups to explore the impact of out-of-pocket costs on patients and to discuss potential policy solutions. Additionally, we took new steps to educate people about the impact of these costs, while providing tips on how to better manage and plan for them.
We hosted the third annual Cost-Sharing Roundtable in collaboration with the American Journal of Managed Care. The day-long event brought together thought leaders from the private and public sectors to discuss policy solutions and resulted in a final report. Read the Executive Summary and access the full report here.
In June 2018, with support from 52 patient advocacy groups, PAN submitted a letter to the U.S. Department of Health and Human Services in response to its Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs Request for Information.
Collectively, we agreed that far too many people abandon prescriptions at the pharmacy after learning what they owe out-of-pocket. Our letter asserted that until all patients have affordable access to necessary therapies, patient assistance programs must continue the critical work of providing needed financial support to those who require costly medications to maintain or regain their health, well-being and quality of life. See the press release and full letter here.
PAN published a series of issue briefs—in-depth explainers on timely topics related to out-of-pocket costs—to serve as a resource for advocacy groups and thought leaders. From challenges surrounding access to specialty medications to introducing a cap for Medicare Part D beneficiaries’ out-of-pocket costs, these briefs break down complex issues in cost sharing and benefit design. Access the issue brief series here.
Our healthcare system is complicated and difficult to navigate. Far too often, patients, caregivers and family members are at a loss understanding terminology, insurance design and even where to turn for help. In 2018, PAN took several steps to help fill this information gap:
In 2018, we saw increased attention from policymakers on the need to lower drug prices and reduce out-of-pocket costs for patients, especially those needing access to specialty medications. This attention has highlighted the urgency with which policymakers need to address these complex problems of our healthcare system.
We will continue our work with stakeholder groups to ensure patients can access the medications they need and ultimately, experience lower out-of-pocket costs at the pharmacy counter.